Christian and I (Sarah) are the parents of a 4 yr. old, beautiful, sweet boy named Sven who was diagnosed with Leukemia on 4.19.09. Immediately we started chemotherepy treatment for Sven with the Pediatric Oncology Center @ Stony Brook University Hospital on Long Island, NY. I will outline some highs and lows and most of all type some frustrations away :-)

Wednesday, January 20, 2010


Today we had clinic that is a cancer mom term for an appointment at the cancer center to get Sven's blood levels and chemo. Sven had a port surgically inserted in his chest after his leukemia diagnosis, this allows the doctors and nurses to administer his chemo directly into his main artery and allows them to quickly and safely draw blood (this is done weekly or more) to check that he has enough platelets and enough infection fighting blood cells also to make sure that the cancer is not taking over this all can be seen with the blood tests they run. There are times when blood levels are low and he will need a transfusion and this sort of jump starts the healthy production of blood cells and allows him to stay on his chemo protocol, when the blood levels are too low the chemo schedule is stopped until the body is strong enough again to tolerate the chemotherapy. So the end result Sven's numbers were good and that means he gets his ugly methotrexate dose tonight! Ummm what a reward!

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