Christian and I (Sarah) are the parents of a 4 yr. old, beautiful, sweet boy named Sven who was diagnosed with Leukemia on 4.19.09. Immediately we started chemotherepy treatment for Sven with the Pediatric Oncology Center @ Stony Brook University Hospital on Long Island, NY. I will outline some highs and lows and most of all type some frustrations away :-)

Wednesday, March 24, 2010

ipod touch at...

 Savvy Coupon Mommy she is giving away an Apple IPOD Touch.

Friday, March 19, 2010

this is..

This is Sven just weeks (3) before he was diagnosed.

Life is Mario Kart

Last night we had a family walk after dinner, we leave all the dishes on the table and put on our sneakers and head out for some excercise. We are trying to build up muscle and stamina for Sven as he is not doing well in his physical therepy. The theme was real life Mario Kart, it is a video game that he was introduced to when he was first diagnosed, they use it as a tool at his cancer center to keep him occupied while they do chemo our tubies (access his port). We walked along the sidewalks and every crack, electrical cover, mailbox was a feature in the racing game like bananna peels that make you crash, rainbow cubes that give you super speed and spikey turtles that crash your kart, we laughed the whole walk and Sven did not mention once that his legs hurt or that he was tired or needed to be carried. Hmmm I wonder if it will also work when I head to the gym today and get on that treadmill...oh what I would pay to be 5 again!

Friday, March 12, 2010

Healthy eating minus the ladybugs

Going through all this cancer business has sort of left Sven in a permanent eat what you want stage, because we are just happy that he is eating. Now as we come upon the year mark of his diagnosis we are trying to teach him that his body needs to eat the proper things in order for it to grow healthy. Broccoli has been out as Sven declared 'I don't eat trees' so I was looking toward spinach ( and leafy a plus, + popeye liked it) so I pop him on the counter and get my frozen box of birdseye spinach (my favorite brand in all) and we put some water in I let Sven spoon it around and then OMG a ladybug is in the spinach, Sven dropped the spoon and now declares  'I dont eat ladybugs either' that I have to agree. Hmmm anyone have a kid friendly non tree looking, ladybug free idea?

Thursday, March 11, 2010

Whooo hooo! Happy Birthday.

We have a 5 year old in the house, wow 5! I said to Christian this morning hmmm we have only had him for 5 years, he is sooo new. Well our ice cream cake in bed went over well and our lil angel was watching over us...Sven woke up with a fever this morning and that usually means trip to the ER. I prayed hard and the thermom gave me a happy 99.7 which keeps us home. I am not sure my heart could have taken Birthday Boy at the ER or clinic. We are keeping a close eye on him but he is cooling down and running all over the house with his brand new batman wings and demanding Taco's for his Birthday dinner. We had a happy day and Sven even told his OT that it was the best day in his whole life. WE LOVE SVEN! And a special thanks to our gaurdian angel that we know is with him night and day, day in and day out.

Wednesday, March 10, 2010


FULL color photo for the BDay countdown post. All Birthdays deserve a color photo!


IT'S COMING ON THE BIG DAY! Sven will be 5 on Thursday 3/11. Whooooo hoooo. My little guy has wanted to be five since he was 2 and I remember the big croc tears at his 2nd birthday party when we told him he was 2 he cried and said but he wanted to be 5. Christian and I will wake him up in the morning with ice cream cake and balloons in bed, sounds exactly what as parents we should not do but considering the rough year he has had to endure we would fly in on unicorns if he wished it. We will then let him pick out as many dunkin donuts munchkins he wants to bring to school for his classmates to celebrate his birthday with him. I then told him that he could play on the school playground for as long as he likes. Because of the big boy bullying he has a new found fear of playing by himself at the school yard but I also let him be fully aware that both Papa and Mama will pick him up from school and will both be there to watch him on the playground and the best part of my night....letting Sven know that his Papa would be bigger than the big boys on the playground and that with that he could run, play laugh all knowing that he had the biggest boy on the playground (Papa) watching over him!!!

Monday, March 8, 2010

Happy Monday

Today Sven and I officially take our day off. No school, no clinic, no therapy, no errands! Just him and I having our day. We are on the last day of steriods so I am running around with 'Im hungry Mama' commands. But the best of the day so far...Sven told me it was my special day, this he explained meant that I could play anything I wanted for as long as I wanted. What a great kid :-) I chose Chutes and Ladders and hmmm guess who won, Sven! He was one sqaure away from winning and I told him to win he needed to spin and land on the number 1...he did and it did!

Thursday, March 4, 2010


Can anyone answer this? When does the hurting I feel go away? I just had to report the bullying of Sven at his school to his principal and again I am overwhelmed with sadness, the connection I have to my Sven is so strong and I am left to think that maybe the hurting won't go away and that incidents like the bullying will only intensify my feelings of sadness it's like a never healing wound, or at least when it starts to heal a situation like what happened at school opens it up. When I brought Sven to class today his teacher who was witness to my breakdown on Tuesday with the bullying did not say a word, I can't say that she should have said something, but the slightest bit of understanding is not present and it gives me the idea that Sven, Christian and I are all alone, only other parents fighting this cancer can understand and those parents are not in our everyday world to give us a wink and let us know they get it, they understand, they too still wake up in the night and check to see if their kids are breathing. New World Rule: Kids that have cancer and fight it daily = extra special kids that should be loved more and EVERYONE!

Tuesday, March 2, 2010


Okay, I just almost mauled a Mom at Sven's school = super sensitive today. Boys teasing Sven about his hair and trying to pull his hat off. I thought about my reaction to the boys Mom, was I over-reacting, NO! Does the other boy have to know Sven has Cancer and that is why his hair is different, No! I would think that compassion is born with us, it does not have to be a rule, 'do not tease kids with cancer' Sven has seen at the clinic, all kinds of kids with hair, without hair, with tubes in their noses, shunts in their heads, not once has he looked at them any differently then he looks at his NORMAL classmates, nothing we have taught, this is why I cannot accept a half apology that they do not understand that Sven has cancer and that is why the act itself was not that bad. THINK PEOPLE, live a day in our life. Has he not been through enough. Maybe if Sven did not have cancer I myself would not understand, and I hope that I would have still been compassionate enough to see the pain that people have to go through while dealing with this. Grrrrr.